I know it sucks. All this waiting and still nothing definitive. Actually the FISH results came back and showed 90% blasts — which is really, really bad. The reason there is nothing definitive is because the FLOW and morphology both show 6-10%. Dr. Horton went to all of the labs/pathologists to sit and discuss what they are actually seeing, and all pathologists confirm that what they are seeing are really cancer cells, not weird immature cells that potentially could be cancer cells.
So, because there is such a huge discrepancy between the readings, we will continue on with the scheduled methotrexate on Monday as well as another aspirate/biopsy. The GCSF will stop, which might be the reason everything is so off because it increases new/immature white blood cells that can be interpreted as blasts or cancer cells.
The other bothersome/worrisome thing is, today’s CBC’s showed 61% blasts and over the past two weeks he’s needed daily blood products and is very tired — neither are a good sign of recovering marrow. But all of these effects could be due to the GCSF so more labs were drawn this evening to check cytogenetics and see if they really are cancer cells. The results from this test could be as late as Monday. It sucks, I know. BUT if his blast count keeps increasing between now and then, methotrexate and ARA-C will be given as early as Saturday.
I also told the doctors that if this doesn’t work I will go anywhere to find a cure (I actually saw one in Germany he might qualify for) — and asked for their help finding a trial and acceptance.