Wednesday was clinic — we moved it up two days because we are getting ready for our annual pilgrimage to So Cal to visit PoPo!
Johnny’s visit went very well. All of his counts are up — ANC 1,100, HGB 11.5, platelets 237. WOO HOO! We didn’t see our usual doctor — but she left strict instructions with the Dr. who did see us, to “NOT CHANGE ANY OF HIS MEDS!” — this to the head of the Cancer Center. He’s still at 33% of meds.
Tomorrow starts our vacation at PoPo’s, just two weeks this year — a week or two shorter than usual because the boys decided to go to Camp Periwinkle (cancer camp). They are super stoked. They will be gone for one week (we are super stoked!) — you can write them too, here’s the address:
Joey or Johnny Romano
Camp Periwinkle
6301 Rehburg Road
Burton, Texas 77835
When the boys heard about all of the stuff the campers did last summer, it made them really want to be there this year. They have big party boats(?) and the kids can wake: board, skate and surf. I’m not exactly sure what separates each sport, probably just a very expensive piece of sporting equipment…. Mike asked if we could ship Sophie off somewhere the week when the boys are gone. She’s not old enough to go to camp yet –have to be 7 — and Johnny can only take one sibling at a time. But we can’t wait ‘to broaden’ her horizons one day!
Deluxe has done another run of Johnny’s board — new design and sizes. It is amazing what they have done for Johnny (as well as us), I can’t say enough good things about them. On this board, they put Johnny’s history with Deluxe on the board — it’s not just a card included in the shrink wrap, it’s part of the board. When I saw it proudly displayed at O’hana’s it brought tears to my eyes. The guys at Deluxe are good people. There are nice people, fun people, crazy people all sorts of people, but it is hard to find GOOD PEOPLE. We were lucky, we found a bunch of them at Deluxe.
Deluxe also has a HUGE two page ad in Thrasher Magazine this month with Johnny and his board. It’s huge. TWO PAGES! Then Jim called one day to ask if Johnny wanted his own shoe.
His own shoe? you mean like, you want to send him some shoes?
No, as in his own signature shoe — You know, like Michael Jordan or Tony Hawk.
Are you kidding?!?! No way! How cool is that?
Deluxe doesn’t make shoes, but they know people who do.
Adio. A company also FULL of GOOD people. They are one of the main sponsors at the Skate Jam in November — where we met everyone. So sometime in the near future you will be able to buy the ‘Johnny Romano shoe by Adio, proceeds benefiting Make A Wish’ of course.
Okay, here’s the other cool thing. Mike has a surfing friend that works for the Coast Guard, and he invited Mike and the boys for a tour. These guys aren’t the search and rescue Coast Guard — they are the Special Ops/Navy Seal kind of Coast Guard.
um. Okay. Whatever (as I shrug my shoulders). We both thought it would be about an hour — they would get on the Coast Guard boat and go out the the bay. woo-hoo. look at the Bay kids! see all of the water…
We were wrong. Really wrong:
